While we were waiting we found out that I was exposed to CMV....the person I was exposed to had given it to me and she was pregnant. Her child had developed complications from what was perceived to be CMV and now I was exposed. The problem was that there was no telling what would happen to a boy with SCIDS that contracted this disease. This was a very stressful time in our lives!
Just before Thanksgiving we had the amniocentesis and in December we found out that we were having a boy...and that he had SCIDS. We were happy to be having another son...but at this point we knew that the Lord's hand was on his life and that in the end everything will be OK.
But here is the thing....we had A LOT of people upset with us! Even though we had peace they couldn't understand.....we had people pressuring us to abort our child. There was absolutely NO WAY this was going to happen! But I felt like I had to fight tooth and nail for my son and he wasn't even born yet!
Fast Forward to April 1991....we had everything planned.....our son would be born in University of Pennsylvania....which is connected to Children's hospital of Philadelphia......he would be kept in isolation...until we could officially get him diagnosed and then he would have his transplant.
I went into labor at 3 weeks.....and the doctors stopped the labor....they weren't ready yet! Well one week later they decided to induce labor....so my
We did do the test and yes he did have SCIDS....so he was whisked away to CHOP and he was the youngest Bone marrow Transplant recipient....he was 70 hours old! Since they knew that he was going to need a transplant they used the leftovers from the transplant from David....They also left in the artery from the umbilical cord and so he didn't need a port....after a week...they sent him home.....we were so excited! This was all new and very unusual but because we knew ahead of time and were prepared it was OK!
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